April’s Alternative Facts 

April’s edition of #operationsockdrawer is complete. I decided to use The tried-and-true Silver’s Sock Class pattern, since I would be working on these while traveling and I have it memorized. I also wanted something rather simple to showcase this gorgeous yarn. I picked it up at Michigan Fibre Studio when they were having a trunk show for The Lemonade Shop, a Colorado-based Indy yarn dyer. I love her fun use of color and great names for her yarns. This colorway is Alternative Facts. Complete details can be for be on Ravelry

Joseph: living on the spectrum

I have been thinking about writing this post for so long. Almost two years, in fact. I’ve started it many times, but I haven’t been able to find quite the right words.  Instead of using the perfect turn of phrase, I’ve decided to just jump in and use the imperfect prose that comes from my heart.

Many of you know that Joseph received an diagnosis of Autism Spectrum Disorder (ASD). It’s not something that I have hidden from our family and friends and have no trouble discussing with others. However, I have been hesitant to discuss it here because this format doesn’t leave much for conversation or questions that so often follow that statement. ASD is such a broad, umbrella diagnosis, it’s like saying I have cancer. . . Cancer can mean anything from something completely treatable, like a small melanoma that can be removed to a devastating, evasive disease like systemic bone cancer.  . . or anything in between.  Instead explaining ASD as a whole, I’d rather share Joe’s story and how it relates to him. If you’d like more information about ASD, I’d suggest looking here and here.

We started noticing some speech delays with Joe right around 2.5 years old. At first I thought it might be because of the stress of moving from Columbus to Chicago, but after talking with our pediatrician (and some great advice from my mom) we sought some assistance through Illinois’ Early Intervention Program. (EI)  This state-run program gave us access to in-home speech, occupational, and developmental therapy until Joe turned three, after which he would receive therapy through our local school district. I cannot express the gratitude and love I have for our therapists, especially Jamie and Janna, they were amazing with Joe and provided me no small amount of comfort.

When Joe turned three, he transferred into our local school district’s Early Childhood Special Education Program (ECSE) – a specialized preschool program for children with special needs. Again, we were blessed to work with some truly wonderful, talented teachers, therapists, and staff. They made the transition of Joe going to school, something I was anxious and scared about, a true joy. Joey absolutely bloomed and his progress was astounding. I know that it is because of the dedication of that team that allowed it to happen.

After Joe turned three, we took him to a developmental pediatrician, Dr. B with Lurie’s Children’s Hospital. Dr. B did a lot of testing and came to the conclusion that that Joe fell somewhere on the Autism Spectrum. He is considered to have a “scattered diagnosis” meaning that some typical traits are not present in Joe, but others were. Overall, he’s considered “very high functioning, highly verbal, with some  issues with sensory processing.”

Joe continued in the ESCE while we lived in St. Charles and again once we moved here to Grand Rapids. He is excelling in the program here and we will soon find out the plan for Kindergarten. He is testing very high academically – currently reading on a second grade level, understanding math concepts, spatial relations, and more. His challenges includes peer interaction, some pragmatic and social speech skills, attention span/focus, and compliance with non-preferred tasks.

I can’t overstate how much of an impact EI, our schools’ ESCE program, and all of our wonderful educators and therapists have had on Joe. Especially now when many of those programs are in jeopardy. I cannot imagine where we would be without these programs. We are also VERY fortunate to have insurance that has helped defray the costs of therapy, many families are not in that situation.

I wanted to share because I know that there can sometimes be misconceptions about ASD and a tendency for some families to hide their diagnosis for fear of people not understanding or stereo-typing their children. I feel that ASD is only one small part of Joe, but it does help make him who he is. Why would I ever want to hide part of that beautiful boy away? I never will do that, it would dull his sparkle.

All in all, Joseph is like any typical five year old. He loves playing with cars, trucks, trains, and legos. He loves being outside and exploring the world. He loves to swim, sing, dance and play. He loves his iPad and watching anything by PIXAR. He is stubborn, generous, sensitive, strong, kind, smart, and silly. He brings joy and happiness to all that meet him and is truly my sun and stars.


 

April is Autism Awareness month. Please consider participating in some way. Perhaps by lighting it up blue, join a walk, or donating supplies to your local school’s Special Education department.

 

March Martian Rainbows

March’s socks for Operation Sock Drawer are complete. I absolutely loved this self-striping sock yarn from Must Stash Yarn & Fiber. The color-way is Martian Rainbow, hence the name for this month. It was a bit addicting to watch the colors emerge (thrilling, I know) and blend from one to the next. This was a “perfect match” yarn, meaning that the skein was split in two and matched, making it possible to make the stripes align for both socks.  I used the Smooth Operators Socks by Susan B. Anderson. This is a top-down construction with an afterthought heel. (Full details on Raverly.)

Joe was quite enamored with these while I was working on them, wanting to have them for himself. Since I had enough leftover yarn, I decided to knit up a pair just for him. Finished just in time for his birthday.

Joseph 5.0

Another year has flown by, how can it be that you’re turning five today? This was another year filled with lots of changes and challenges for our family, but as always,  your joyful and easy going attitude helped us make it a wonderful one.

Your growing independence and strong-willed personality has blossomed during your second year of school, I love picking you up and hearing that you had a “fun” or “awesome” day at school and hope that you are always so excited and passionate about your education.  Your academic skills  continue to amaze. Reading at a second grade level already! I love your interest in science how inquisitive you can be. So many questions about the sun, stars, weather, and the world around you.

You are always so busy with your toys, whether racing your cars and trucks, building with legos, or building track for all of your Thomas trains. Although you want to be an iPad junky, you continue to love the outdoors, no matter what the weather, and are happiest when in the water.  You are doing so well at swimming lessons, I love watching you dive for rings while wearing your goggles. You are always generous with your hugs and kisses and love nothing more than to snuggle up together and watch a movie. I am so blessed to be able to continued to watch you grow into an amazing, wonderful, human being.  Happy Birthday, Joseph William, you are my shining star. Mommy loves you so very much.

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Six Years . . .

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Time continues to fly swiftly by. I still visit that bench, although not quite as often.  Another year has passed without opening that box. Perhaps next year I will have the strength and courage to do so.

Your brother grows and thrives, so vibrantly, he seems to glow from within. At times, I like to think that he carries not only his own brightness, but yours as well. Maybe it is just a reflection, a trick of the light, I can’t help but think of both of you when I catch a certain twinkle in his eye or the sun shines down on his shoulders.

Though we shared only a few precious moments with you in this world, they are some the most precious I hold in my heart. On this day you gave me the gift of motherhood, a gift I will cherish forever. Happy 6th birthday, Mary and Christopher. We love you so.